Read about cancer colorectal xeloda here
Sep 30 2009

INFRINGEMENT: FREEDOM OF SPEECH/MEDICAL DOCTORS by Neil Shulman MD

INFRINGEMENT: FREEDOM OF SPEECH: MEDICAL PROFESSIONALS

The United States is a country where freedom of speech is supposed to be a basic right. Administrative power and personal wealth should not give any American the right to infringe on one’s freedom of speech. MANY DOCTORS FEEL THAT a downturn in the economy can create an UPSWING IN VOLUNTEERISM. LACK OF MONEY DOES NOT HAVE TO MEAN A LACK OF SERVICES. MANY OF THESE DOCTORS
ARE VERY CRITICAL OF BLATANTLY INSANE POLICIES BUT ARE AFRAID TO SPEAK OUT FOR FEAR OF PERSONAL REPERCUSIONS.

There are many caring doctors and other health care professionals who intentionally take lower paying jobs and/or volunteer their services because their goal in life in NOT TO MAXIMIZE THEIR BANK ACCOUNT OF MONEY BUT RATHER TO MAXIMIZE THEIR BANK ACCOUNT OF GOOD DEEDS. Many of these people have more global insights into the life-threatening impact and economic inefficiences of certain institutional and political policies. HOWEVER, IN MANY INSTANCES, THERE ARE ATTEMPTS TO INFRINGE ON THE FREEDOM OF SPEECH OF THESE HEALTH CARE PROFESSIONALS. Even well meaning journalists who wish to expose certain inefficiencies in humane health policies are often restricted from reporting.these stories. The executives of these media outlets are too often fearful of “losing revenue” from advertisers when such ‘CONTROVERSIAL” news stories are reported.

THE FOLLOWING ARE A FEW EXSAMPLES OF INSANE POLICIES WHICH FRUSTATE MANY “CARING” HEALTH CARE PROFESSIONALS EVERY DAY:

1. Medicaid rules which DO NOT ALLOW COVERAGE TO REMOVE AN EARLY CANCER BUT REQUIRE PATIENTS TO WAIT UNTIL IT SPREADS THROUGHOUT THEIR BODY.

2. Managers of health care institutions who prohibit cooperative institutional volunteeerism in order to address health care needs of the poor. Example: Executives of dialysis clinics NOT JOINING TOGETHER to keep uninsured patients with kidney failure alive.

3. Executives of hospitals not joining together to provide a few weeks supply of free essential medications to hospitalized uninsured poor patients upon discharge. The reality is often that these patients DO NOT HAVE INSTANT ACCESS TO MONEY OR TRANSPORTATION TO OBTAIN THESE MEDS thus they bounce back to hospital emergency rooms …………uneccesary personal suffering and avoidable expensive rehospitalizations.

4. Incremental increases in upfront fees for outpatient visits with NO EXCEPTIONS.
Therefore patients with VERY LIMITED RESOURCES can’t get essential refills of medications thus they suffer/bouncing back for expensive emergency room visits when their chronic illnesses become life-threatening.

5. Pharmaceutical companies often blast the public with PR CAMPAIGNS about
free medication programs for the poor HOWEVER the companies often create so many time-consuming roadblocks for instant access to these medications that health care professionals cannot get the meds to the patients in a timely manner.

I DO NOT SPEAK FOR MYSELF ALONE BUT FOR MANY HEALTH CARE PROFESSIONALS WHO ARE AFRAID OF NEGATIVE PERSONAL CONSEQUENCES IF THEY SPEAK OUT ON THESE ISSUES.

Neil Shulman MD
Atlanta,Georgia

Sep 29 2009

Play MISTY for Me? No Investigator Given Full Set of the Data

In the Migraine Intervention for Star-Flex Technology (MIST) trial the mist seems to be making it difficult for me to understand the study results. The original trial was supposed to examine the effects of closure of patent foramen ovale (PFO) on migrain headache. However all of the conflict of interest, alleged misrepresentation of data, authors who pulled out because they saw distortions of study results, etc etc etc, is giving me a headache.
Now, the editors of Circulation are going to have to take the walk of shame (which, briefly, is when you are late picking up your kid, and they have to walk out to the street to wait for you) which does not include Mrs. Bremner who informs us that she is only editor of one of the Circulation “sub” journals. And I of course am not the editor of anything cuz I, well, hmm. Don’t know.
The title of this blog No Investigator Given Full Set of the Data actually comes from a lawyer for the company NMT that makes the device, which of course represents a total violation of publication rules and ethics, so I guess they are just saying throw a wad of cash at doctors and sign our co-authorship declaration forms.
As for the particulars of this case which have been reported here on the Scientific Misconduct blog of Aubrey Blumsohn as well as theheart.org, it looks like they may have changed the readings of the cardiac echos after the fact, and that two of the authors had ownership interests in NMT Medical the manufacturers of the device in the study. But hey, what me worry, right? Isn’t capitalism great?
Too bad the success rate of the procedure was probably less than a third, unlike the greater than 90% claimed in the paper.
Are there any doctors out there who still claim to be scientists over their roles as entrepreneurs?

Sep 29 2009

More On Flu Shots

Last week I was asked to give a lecture to the Cardiology Department at Emory and since I had been having an online schermish about the topic I offered “Why I Am Not Getting a Flu Shot This Year“. Well, flu shots are mandated for Emory Healthcare employees so I guess that raised some eyebrows, and I got a call at home asking why I wanted to give a talk about that. After some back and forth I said that I would be willing to give up half of my time, and infectious disease expert James Steinberg MD arrived at the lecture. I presented the fact that randomized controlled trials (RCTs) did not show that flu shots reduced time lost at work or mortality, and that the conclusion of the Cochrane Review is that the evidence does not fit with public health policy when it comes to flu shots, as I have written about before. The one group that might benefit from flu shots according to the Cochrane Review is elderly living in nursing homes, although that may due to the ‘frailty bias’ i.e. some are too infirm to get a shot. A recent study in Lancet of the elderly showed that there was a 40% reduction in pneumonia in vaccinated patients that occured during a time when they could not possibly get the flu; it was mostly due to the bias related to functional status. The actual reduction in flu related pneumonia during the peak flu season was only 4%!
He countered with a study showing that they reduced mortality in cardiac patients (he actually presented only one of two, and the combined evidence is negative, as an article in last month’s Lancet shows). He also showed cohort studies, which are prone to bias.
Finally he showed some studies on vaccination of health care workers showing a reduction in mortality of patients when healthcare workers (HCWs) were immunized. I didn’t think we were talking about HCWs, but I guess that is the reason they showed up. We had some discussions about the utility of immunizing all HCWs, even those not around sick patients, so I thought I would research the topic some more.
It turns out that (surprise, surprise) the evidence for the efficacy of flu shots in HCWs is not that great. The only positive studies are in HCWs who are working with the elderly in nursing homes. And even in that group it looks like both HCWs and the patients need to have flu shots. In fact the Cochrane Review concluded that there wasn’t sufficient evidence to conclude that giving flu shots to HCWs was benificial in reducing mortality in their patients.

Sep 28 2009

‘These Are Real People’

These women stood up to say that noone from Grady had provided them followup care.

These women stood up to say that noone from Grady had provided them followup care.

Indeed. Words spoken today by Lindsay Jones, attorney representing the dialysis patients who have been given a death sentence by the decision to close Grady Dialysis Clinic in Atlanta, GA (see “Do I Have the Right To Live?” and the original post on this story “Grady Hospital Tells Dialysis Patients to Leave or Die.”). Last week the judge in the case ruled that the patients didn’t have any constitutional rights (what about the ones with green cards? You have to be a citizen to have rights? Oh really? What about the right to LIVE?) and pulled the temporary restraining order. Today at the Fulton-DeKalb Hospital Authority (which oversees the Grady Memorial Hospital Corporation, which runs the hospital) run by Pamela Stephenson the Authority announced that it supported the decision to pay for three months of dialysis and then cut themselves loose from patients without insurance or Medicaid. One of them made a little speech about how we should get the other counties in Georgia to help pay for Grady. They said that they were going to make sure that everyone would get appropriate transition, and when we said that the patients had not been told that, Michael Young the CEO of Grady started shouting at us. But then four women stood up who said that they had not even been informed that they got three more months let alone would get help transitioning to other care! (whatever that might be). One of them had already bought her ticket back to Honduras. Last week A.D. “Pete” Correll, ex-head of Georgia Pacific Corporation, shouted at us that Grady was losing too much money. All of this is of course cruel and inhumane and makes me ashamed to be part of a community that just tosses human beings aside like so much garbage. As Dorothy Leone-Glasser of the Grady Advocates for Responsible Care, said, “I don’t know how anyone involved in Grady can sleep at night because I can tell you that none of the patients that we know about — 34 of them — and their families will be able to sleep at night. I dont’ know how they can do it.”

Sep 26 2009

Update on Closing of Grady Dialysis Clinic

via Bertie Skellie of Grady Advocates

 

Dear Friends of Grady Patients & Workers,

 

Please see below several articles and links related to the closing of the dialysis clinic at Grady. They are listed in this order: AJC on today’s ruling by the judge (with other AJC links), a link to Dr. Doug Bremner’s report from the courtroom on Monday, Dianne Mathiowetz’ article for Worker’s World, Wall Street Journal, & New York Times.

 

I will let you know details of our next action related to the dialyis clinic closure.  It will most likely be Monday, when the Grady Authority has a meeting & when the case is likely to be back in court.

 

Peace,

 

Bert

 

 

Judge clears way for Grady dialysis to close

By Shelia M. Poole and Craig Schneider 

The Atlanta Journal-Constitution, 9/25/09

A Fulton County Superior Court judge this morning cancelled a temporary restraining order that had stopped Grady hospital from closing its outpatient dialysis clinic.

Related

·                                  

·                                 N.J.: No Grady dialysis patients

·                                 Advocates rally to demand Grady dialysis stay open

·                                 States won’t take Grady patients

·                                 Court orders Grady clinic open

·                                 Grady dialysis patients get reprieve

·                                 Grady offers to relocate patients

·                                 Grady dialysis center to close soon

The clinic is expected to close in about a week. Earlier, officials said the clinic was to close Saturday.

The hospital had planned to close the clinic Sept. 19, but patients and advocates asked the court to stop it, saying they would suffer harm without the service. Many of the patients are illegal immigrants who are poor and Grady is the only major hospital in metro Atlanta that offers them free outpatient dialysis service.

In a ruling this morning, Judge Ural Glanville said that the patients lacked the legal standing to bring the request to the court.

“The court is unpursuaded at this time that the plaintiffs have a constitutional right to the sought-after relief,” the judge wrote in his decision.

The judge had granted the temporary restraining order a few days ago pending a hearing. His decision followed the earlier hearing.

“I think it’s a travesty,” said Dorothy Leone-Glasser, patient advocate and co-founder of Grady Adovates for Responsible Care. “I don’t know how anyone involved in Grady can sleep at night because I can tell you that none of the patients that we know about — 34 of them — and their families will be able to sleep at night. I dont’ know how they can do it.”

Abebech Tadesse said her 69-year-old father, Tadesse A. Amdago, a green card-holder from Ethiopia, has no options other than Grady.

“The only option is to count the days until he dies. It’s not a peaceful death,” she said.  ”I will pray and see what’s going to happen.”

 

See just below to Dr. Doug Bremner’s report from the courtroom on 9/23, entitled “Do I have the right to live.”

http://www.beforeyoutakethatpill.com/index.php/2009/09/23/do-i-have-the-right-to-live/ 

 real death panel

Corporate board pulls plug on dialysis for poor patients

By Dianne Mathiowetz 
Atlanta 

Published Sep 23, 2009 6:24 PM

More than 100 patients, their family members, doctors, other health workers and community activists packed into the board room at Grady Hospital on Sept. 14 to press for the continued operation of the outpatient dialysis clinic, a function of the once-public hospital for 62 years.

Ignoring the appeals of the crowd, many of whom held signs reading “How Many Will Die?” and “Keep the Clinic Open,” the corporate-dominated privatized board voted unanimously to close the life-sustaining treatment facility on Sept. 20.

Protesters demand treatment for poor people<br>at Grady Hospital’s clinic.


Protesters demand treatment for poor people
at Grady Hospital’s clinic.

Photo: Jonathan Springston,
Atlanta Progressive News

Despite boasting of raising more than $280 million for the financially stressed hospital, Board Chairman Pete Correll, former head of Georgia-Pacific, justified the decision by stating that the dialysis clinic was “a big money loser.”

About 100 patients suffering from renal failure and kidney disease currently receive dialysis at Grady. Some of them must go three times a week to rid their bodies of the deadly toxins that build up. Many of them are long-time immigrant residents who have lived in the Atlanta area for decades but under Georgia law are ineligible for Medicaid coverage.

Others who are U.S. citizens or have a green card have not yet been approved for Medicaid. Georgia has one of the highest rates of application rejection in the country, requiring sick people to apply multiple times or wait extraordinarily long times for acceptance into the program.

In August, social workers began to tell these critically ill people that the clinic was closing. People were given a seven-page list of for-profit dialysis centers to call to see if the centers would accept them as patients.

Their other options were to return to their home country, move to another state where Medicaid is available to undocumented immigrants, or go to an emergency room when the poison build-up brings them dangerously close to death. Federal law mandates emergency dialysis treatment if death is likely.

As a gesture of “care and compassion” for these patients, Grady officials offered to pay for plane tickets to Mexico, Thailand, Honduras and Ethiopia as well as transportation to the 11 states identified as providing immigrant care. Inexplicably, when contacted by reporters from the Atlanta Journal-Constitution, health officials in at least three of those states—North Carolina, Virginia and New Jersey—said they also do not pay for outpatient dialysis treatment for undocumented sick people. Florida, another state on the list, requires a six-month residency, an impossible wait for a dialysis patient.

The patients who testified at news conferences, rallies and at the board meeting repeatedly said they had nowhere to go. Many are unable to work. All have family and children in the Atlanta area who care for them, take them to their doctor appointments and dialysis treatments.

One woman said through her tears: “I have no one in Mexico. Who will look after me?” Her three young granddaughters carried a carefully printed sign that read, “Don’t send our grandmother away.”

Opponents of the closure won a temporary restraining order on Sept. 16 that mandated the hospital continue serving dialysis patients and prohibited it from pressuring patients to leave the state. On Sept. 23, there will be a hearing to determine if the injunction will stay in effect.

In his initial ruling, Judge Ural Glanville stated that before he would allow the clinic to close, Grady would have to provide all patients with a “plan that does not jeopardize their lives or medical needs.”

The Grady Coalition, which has been an activist voice for quality patient care and for workers’ rights at the hospital for 10 years, is being joined in the struggle to save the dialysis clinic by Grady Advocates for Responsible Care, a group of doctors, clinicians and patients.



Articles copyright 1995-2009 Workers World. Verbatim copying and distribution of this entire article is permitted in any medium without royalty provided this notice is preserved. 

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·                                 SEPTEMBER 24, 2009, 11:06 A.M. ET

Atlanta Hospital’s Plan to Shut Clinic Sparks Suit

·                                  

By MIKE ESTERL, Wall Street Journal

ATLANTA — Publicly funded Grady Memorial Hospital has served as a lifeline for this city’s indigent for more than a century, but a plan to shutter its dialysis clinic has sparked a lawsuit on behalf of dozens of undocumented immigrants who say the decision amounts to a death sentence.

The case in Fulton County Superior Court throws into sharp relief some of the hottest issues in ongoing skirmishes over health care and the government’s role in providing medical services: how and whether undocumented aliens should receive free treatment, and how far hospitals must go to provide lifesaving care for them.

“The issue is, do my clients have a fundamental right to life?” said Lindsay Jones, an attorney for the plaintiffs, during a packed hearing before Judge Ural Glanville on Wednesday.

Mr. Jones said one elderly patient, a partially paralyzed and undocumented immigrant from Colombia who was wheeled into the courtroom on a bed, recently returned from Florida after being told he wasn’t immediately eligible for regular dialysis treatment there. He had been receiving such treatment at Grady.

Bernard Taylor, a lawyer for Grady, told the judge that the charity hospital can no longer afford to provide regular dialysis treatment for the slightly fewer than 100 patients of the clinic. He said the clinic is posting annual losses of about $2 million and would require another $2 million to bring the facility up to date even though it serves a tiny portion of the hospital’s patient base.

Mr. Taylor said Grady has taken steps to help about 90% of the patients find alternative care and is committed to finding solutions for the remaining patients, who require dialysis to prevent kidney failure. Grady is the only large hospital in Atlanta still providing regular dialysis for undocumented immigrants — most of whom can’t afford the treatment, which typically costs a few hundred dollars a session.

Judge Glanville said he expected to rule on the matter later this week. He ordered a temporary injunction last Thursday — one day before Grady planned to close the dialysis clinic — requiring the hospital to continue providing the service until it presents “a suitable alternative treatment plan” for affected patients.

Grady estimates about two-thirds of the patients who use its dialysis clinic are undocumented immigrants without health insurance. Mexicans make up the largest single group; others are from countries including El Salvador, Nigeria, Egypt, India and Cambodia.

The dispute highlights conflicting views in state capitals of what constitutes emergency care. Under U.S. law, hospitals are required to treat patients in danger of death regardless of their immigration status or ability to pay. Treatment typically takes place in emergency rooms, with the resulting costs split between the states and the federal government.

Some states also offer undocumented immigrants regular dialysis treatment three times a week outside of the emergency room if the patients don’t have money or insurance. That is because many such patients would return to the emergency room every two weeks or die without regular treatment. Local hospitals can then be reimbursed under Medicaid, a state-federal health-care plan. But other states, including Georgia, don’t approve regular dialysis treatment under Medicaid.

“States have flexibility” in determining what qualifies as an emergency medical condition, said Mary Kahn, a spokeswoman at the Center for Medicare and Medicaid Services, the federal agency that oversees government-funded health care benefits.

Grady has nearly 1,000 beds, serving mostly the poor and uninsured in downtown Atlanta since 1892. It posted an overall loss of $33.5 million last year and relies heavily on federal funding to support operations. Two local counties have provided massive subsidies to bridge Grady’s deficits.

In an effort to shore up the finances, management of Grady was handed over to a nonprofit corporation last year. The board is chaired by A.D. “Pete” Correll, the former head of Georgia-Pacific Corp. But the hospital is still owned by the public Fulton-Dekalb Hospital Authority.

Grady says it can’t afford to keep running the money-losing dialysis clinic without cutting off essential services to other patients in need. It says funds currently being spent on treating nearly 100 dialysis patients could finance 75,000 outpatient visits at its neighborhood health centers, which provide preventive care.

“Those who are less fortunate or who have less access to care will always have a home at Grady. But even in that context, Grady has some tough decisions to make. Otherwise, we won’t be in business,” said Matt Gove, a senior vice president at the hospital.

The hospital began informing dialysis patients earlier this summer that it would be closing the clinic. It recommended patients return to their home countries for treatment or move to one of about a dozen states it says provide the service for undocumented immigrants under Medicaid. Grady also has offered some financial assistance.

Salvador De Lara, the Mexican consul general in Atlanta, said half a dozen Mexican patients had returned to their home country as of Tuesday. He said the consulate was working to ensure continued care for the repatriated patients in Mexico and helping them financially.

But several patients told The Wall Street Journal they still hadn’t lined up alternative care and weren’t sure where to go if the Grady clinic shuts down.

“I don’t know what I’m going to do,” said Rosa Lira Ramirez, a 78-year-old immigrant from Mexico who lives in the Atlanta area. She said she obtained a U.S. permanent resident card four years ago but that she won’t qualify for medical benefits until next year.

Write to Mike Esterl at mike.esterl@wsj.com

 

Immigrants Cling to Fragile Lifeline at Safety-Net Hospital

·                          

 

By KEVIN SACK , New York TImes

Published: September 23, 2009

ATLANTA — If Grady Memorial Hospital succeeds in closing its outpatient dialysis clinic, Tadesse A. Amdago, a 69-year-old immigrant from Ethiopia, said he would begin “counting the days until I die.” Rosa Lira, 78, a permanent resident from Mexico, said she also assumed she “would just die.” Another woman, a 32-year-old illegal immigrant from Honduras, said she could only hope to make it “back to my country to die.”

David Walter Banks for The New York Times

An illegal immigrant says treatment is hours away in her home country.

David Walter Banks for The New York Times

Tadesse A. Amdago says the Atlanta clinic’s closing would have him “counting the days until I die.”

David Walter Banks for The New York Times

Rosa Lira, like Mr. Amdago, said she would expect to die if the clinic closed.

Enlarge This Image

Erik S. Lesser for The New York Times

A lawsuit has put in limbo a plan to close a dialysis clinic at Grady Memorial Hospital in Atlanta.

The patients, who have relied for years on Grady’s free provision of dialysis to people without means, said they had no other options to obtain the care that is essential to their survival. But the safety-net hospital, after years of failed efforts to drain its red ink, is not backing away from what its chairman, A. D. Correll, calls a “gut-wrenching decision”: closing the clinic this month.

The sides confronted each other in state court on Wednesday morning as lawyers for the patients sought to keep the clinic open until other arrangements for dialysis could be secured. Dialysis patients and their families packed the benches and 60-year-old Nelson Tabares, a seriously ill illegal immigrant from Honduras, was wheeled into court in a portable bed.

Despite a judge’s urging that the two sides negotiate a solution Wednesday, there was no agreement by the end of the day on how to go forward. For the time being, a restraining order keeping the clinic open stands. The judge is considering whether to extend it.

The dialysis unit on Grady’s ninth floor might as well be ground zero for the national health care debate. It is there that many of the ills afflicting American health care intersect: the struggle of the uninsured, the strain of providing uncompensated care, the inadequacy of government support, and the dilemma posed by treating illegal immigrants.

Grady is one of many public hospitals that have been battered by the recession as the number of uninsured has mounted. New York City’s public hospital system is eliminating 400 positions and closing some children’s mental health programs, pharmacies and clinics. University Medical Center in Las Vegas has closed its mammography center and outpatient oncology clinic.

“It comes down to which service do you need to keep open,” said Larry S. Gage, president of the National Association of Public Hospitals. “You try your hardest to cut back on services that are going to be available elsewhere in the community.”

Public hospital officials are concerned that the health care legislation being negotiated in Washington could worsen their plight before making it better. Under bills traveling through both houses of Congress, as the number of uninsured declines there would be commensurate reductions in Medicaid subsidies to hospitals that provide large amounts of uncompensated care.

At Grady, about four in 10 patients are uninsured, and an additional 25 percent are insured by Medicaid, which reimburses at rates so low they often do not cover actual costs. As a result, the hospital lost $33.5 million last year, with the dialysis clinic accounting for about $2 million of that total, said Denise R. Williams, the hospital’s executive vice president.

Nonetheless, as a taxpayer-supported hospital with the mission of serving the indigent, Grady is expected to take all comers in need of emergency care, like dialysis. Treatment there does not depend on a patient’s insurance or immigration status.

The hospital has been encouraging some of the dialysis patients to move to other states or back to their home countries, offering to defray some costs.

Hospital officials estimate that two-thirds of the outpatient clinic’s roughly 90 patients are illegal immigrants. They do not qualify for Medicare, which covers dialysis regardless of a patient’s age, and they are excluded in Georgia from Medicaid and other government insurance programs. Legal immigrants face a five-year waiting period before becoming eligible. That leaves Grady to absorb costs of up to $50,000 a year per dialysis patient, some of whom have availed themselves of the thrice-weekly treatments for years.

After years of fiscal desperation and management turmoil at Grady, Atlanta business leaders stepped in last year to force a restructuring, from a quasi-governmental authority to a nonprofit corporate board. In response, the Robert W. Woodruff Foundation pledged $200 million over four years to replace dilapidated beds and modernize computers. A $20 million gift from Bernie Marcus, a founder of Home Depot, is helping to update the emergency department, which provides regional trauma services.

But the hospital’s operating deficits have continued. Grady’s senior vice president, Matt Gove, estimated that its uncompensated care would grow by $50 million this year, up 25 percent. The new nonprofit board eliminated 150 jobs this year, closed an underused primary care clinic and began charging higher fees to patients who live outside of the two counties that support Grady with direct appropriations.

The closing of the outpatient dialysis clinic was recommended by consultants in 2007, who said that equipment was outmoded, that most hospitals did not provide outpatient dialysis and that Atlanta had scores of commercial dialysis centers. When the hospital’s chief executive at the time tried to shut it down, the resulting firestorm helped prompt his dismissal.

This July, the new board voted to try again. The hospital gave patients a month’s notice of the scheduled Sept. 19 closing, and vowed to assist them in finding local dialysis providers, relocating elsewhere and qualifying for public insurance. “We committed that not a single person would be left behind,” Mr. Correll wrote in a newspaper advertisement published on Sunday.

About a third of the patients have been successfully moved, including several illegal immigrants who returned to Mexico with the hospital’s financial help, Mr. Gove said. But others have said they have no place to go, have no means to pay for dialysis or are too ill to travel.

The female illegal immigrant from Honduras, who has a 7-year-old son, said her parents live more than a four-hour drive from the nearest dialysis center, in Tegucigalpa. She is mindful that her sister died from a stroke while being driven to a hospital there. She said she had no money to pay for dialysis because she was too weary from her kidney condition to hold down a job.

“I feel like they are trying to get rid of me because I don’t work,” she said, her eyes tearing. “But being sick is not my fault.”

Samuel Tabares, who rolled his father into court in his bed, said his father, who was paralyzed by a stroke, would probably not survive the strain of relocation or repeated trips to the emergency room in search of treatment.

“They’re treating the closing of this clinic like it’s the closing of a dental clinic,” Mr. Tabares said, “as if people’s lives don’t depend on it.”

 

 

.


Bert
404-378-5883

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Sep 24 2009

Guard Your Girls or Gardasil? Or Guard Your Girls Against Gardasil?

The vaccine for the human papilloma virus (HPV) vaccine, Gardasil, was mandated for all young girls in Texas in 2006 and there were proposals for mandated vaccination in a growing number of other states. But a flurry of publicity about conflicts of interests by those who were pushing it in Texas and outcries from those who thought Gardasil shots would make girls run wild in the streets led to a shelving of plans to make it mandatory.

But is the HPV vaccine safe and effective? Since we are trying to prevent cervical cancer that will happen 20 years down the road we don’t in fact know the answer to that question. The fact is that noone did a randomized clinical trial to measure long term outcomes, so we simply don’t know if the risks outweigh the benefits. And in this country most women get pap smears which are very effective at preventing cervical cancer deaths, which are relatively rare compared to other cancers. And the women who get pap smears are going to be the same women who get gardasil, which you have to get every ten years.

And given the concerns parents have had about other vaccines, I am not surprised that some parents get nervous. And recent pushes to get boys to take gardasil is simply excess disease and prevention mongering.

A Freedom of Information Act request to the FDA showed that as of October 2007 there were 1,824 adverse events associated with the vaccine Gardasil, including 11 deaths. Known side effects of Gardasil include pain and swelling at the site of injection. Fever occurs in about 1% of cases. There are also recent reports of girls passing out after getting an injection.

Human Papilloma Virus (HPV) is a virus that is spread by unprotected sexual intercourse that affects more than half of the population. HPV can cause genital warts and in rare cases cervical cancer. For 95% of people, however, they are asymptomatic and never know they have an HPV infection. Although almost all cases of cervical cancer are caused by HPV, since HPV is so ubiquitous it is uncommon for HPV to progress to cervical cancer. Cervical cancer kills 4000 women per year, only 1/10th the death rate of breast cancer, for example. If you do the numbers, that means that about 0.002% of women infected with HPV die each year from HPV-induced cervical cancer–not a very impressive number.

Safe sex practices, although not always realistic behavior to expect, especially in young people, are an alternative way to prevent HPV until more is known about the vaccine. However you should know that condoms won’t always stop infection, since HPV can be spread by parts of the genitals that are not covered by the latex.

Sep 23 2009

Do I Have the Right to Live?

Today in Fulton County court the courtroom was packed with dialysis patients and advocates who were scheduled to have their dialysis turned off last week but for whom a temporary restraining order had kept the Grady clinic in Atlanta GA open until today, I guess. Lawyers for Grady Hospital argued that the patients don’t have a right to healthcare (that one made me kind of wonder) and that Grady (whose mission is to care for the sick and indigent poor) didn’t have any obligation to them. They provided an affidavit saying that 88 patients had been provided with followup. Now I am not a math major, but originally there were 95 patients and there were at least 25 in the court and 95 minus 25 equals…

Oh, and their “followup” was to send at least two to Mexico which doesn’t have long term dialysis, and therefore they will die there.

The lawyer for the patients argued that closing the clinic was sentencing them to death, therefore depriving them of the right to live. I mean, doesn’t the US Constitution give us the right to live? If we have someone on death row for killing someone we spend millions to give them due process, but if they are a Grady dialysis patient we just turn off the plug. People go nuts over pulling the plug on brain dead Terry Schiavo but we have no compunction turning off dialysis.

One of the patients has a green card and is short of one year to qualify for Medicaid. But, I guess, she must die. One was sent to Florida because they said he could get dialysis there but couldn’t get it, had a stroke and came back to Atlanta.

Fulton Courthouse, Sept 23, 2009

Fulton Courthouse, Sept 23, 2009

There is something seriously messed up with a country that allows people to die like this. The Judge is supposed to give a ruling today or tomorrow.

Join the FB cause “Protest Grady Hospital’s Death Sentence for Dialysis Patients” here.

Sep 23 2009

Why I am Not Getting a Flu Shot This Year

I have been having a back and forth with some of the MDs at Science Based Barfers (oops, I mean BLOGGERS) about the utility of flu shots. I had suspected all along that David Gorski, MD PhD, was behind it all along, as he had been grumbling in the past about me in the comments section of a blog related to a dispute over the diagnosis of PTSD.

David Gorski, MD, PhD, author of "Respectful Insolence"

David Gorski, MD, PhD, author of "Respectful Insolence"

Dr. Gorski has a one pony show on his “Respectful insolence” blog related to knocking down alternative medicine and vaccine opponents and pals around with other MD bloggers. He started out as the anonymous “Orac” but got revealed by some persistent cyber sleuthers.

Anyhoo it started out with a random strike by Peter Lipson MD who wrote “Before You Trust That Blog” which I responded to here. Gorski later revealed that he had become incensed because my original blog “Flu Shots are for Idiots” (which actually dates back to 2007 but which I reposted as “Flu Shots Are [Still] for Idiots” in December 2008) was being circulated, and had invited the SBM guys to take a swat. Following my response Gorski wrote his own response about why he was getting a flu shot with a response by Rick Lippin MD on my behalf, which he also posted on his own blog, basically saying stop acting like such a, well, troll.

I guess I should feel that I have somehow arrived since the response to my book and later my blog from physicians was, well, to not respond. At least until now.

They start out by saying that I am against the drug industry, that there have been a lot of life saving drugs developed by the pharmaceutical industry, and that I am paranoidly positing a conspiracy amongst drug companies that does not exist. Well first of all as I have said many times before I don’t have anything against drug companies per se and I think there are a lot of medications that have benefits for certain people in certain situations. I am just advocating for the right of people to know the true risks and benefits of prescription medications and to be able to educate themselves and not just take the word of some “I am right” doctors. Which is what these guys look like. To me at least.

Second of all, as for a “conspiracy”, I had to do my usual lookup of the definition and came up with the following.

con⋅spir⋅a⋅cy[kuhn-spir-uh-see] 

–noun, plural -cies.
1. the act of conspiring.
2. an evil, unlawful, treacherous, or surreptitious plan formulated in secret by two or more persons; plot.
3. a combination of persons for a secret, unlawful, or evil purpose: He joined the conspiracy to overthrow the government.
4. Law. an agreement by two or more persons to commit a crime, fraud, or other wrongful act.
5. any concurrence in action; combination in bringing about a given result.

Well I think that the Pharmaceutical Research and Manufacturing Association (PhRMA) headed by Billy Tauzin might qualify, don’t you? Or a pervasive pattern of drug companies to manipulate study results, manufacture publications, market off label, cover up side effect profiles, inflate prices and profits at the expense of the consumers (and tax payers), a pattern that extends across companies, would qualify, don’t you?

When you get behind the fuss and feathers of what the doctor bloggers are saying there is not a lot to their arguments. For instance Gorski points to a blog written on SBM by “revere” which is actually a blog written by a compendium of public health officials talking about why the H1N1 “swine” flu shouldn’t dissuade us from getting vaccinated against the “regular” flu. First of all they don’t give any good reasons to get vaccinated at all, and second of all if you read the comment section in my prior post you see that they admit that the question of whether flu shots are useful is “technically difficult”. I don’t see a reason to panic about either the swine flu or regular flu.

LOLcat anxious over swine flu

LOLcat anxious over swine flu

Lipson points to a study in NEJM which is in fact a cohort study, meaning that they compared one group of the elderly living in the community in one part of Canada to another group in another part of Canada who didn’t get the flu shot. Any methodologist will tell you that these kinds of studies are potentially rife with errors, which is why the RCT is the gold standard. The other study he points to is also a cohort study.

My original position was based on a bmj editorial by, yes, an epidemiologist, Tom Jefferson, who pointed out that randomized clinical trials (RCTs) had not shown that flu shots prevent deaths, loss of productivity or loss of work days in people who do not have lung disease. Dr. Lipson says that this editorial was “eviscerated” in a letter to the editor. Perusal of the letter, however, merely shows that the author was arguing in favor of using observational data and not requiring randomized trials, not really adding much or pointing out any fundamental flaw of Jefferson’s logic. We have all seen the dangers of relying on observational data which led to the use of hormone replacement therapy (HRT) in millions of women based on the chowder headed idea that these would decrease heart disease and cancer when, in fact, they did the opposite.

[update: Gorski also wrote a a response to my original response here.]

Sep 22 2009

Dialysis Patients Face Certain Death Sentence

Last week I wrote about the situation of the Grady dialysis clinic which the Grady Board voted to close last week. This means certain death for patients treated there without insurance as the private dialysis clinics won’t treat the patients, and emergency rooms will only treat them if they are within two days of death (see “I Need the Dialysis. I Think I will Die.”) This struck some of us in the healing professions as particularly cruel and inhumane, and some of our readers from other countries said we didn’t have the right to call ourselves a civilization if we treated people like that. The 90 or so patients represent a mix of undocumented aliens, people waiting for their green cards, and those who haven’t lived in Georgia for five years and don’t qualify for Medicaid. So far efforts to get private clinics and local teaching hospitals to provide compasionate care have been to no avail.

Last Wednesday local attorney Lindsay Jones, working pro bono, was able to get a court injunction to keep the clinic open. Last Friday the local AJC did some slam dash journalism by picking up the phone and getting someone from the New Jersey Medicaid department who said that they did not provide care for undocumented aliens, in spite of what a spokesman for Grady said. His response was “Nah-ah”.

Tomorrow there is a court date at Fulton County court on Central Ave between Prior and Martin Luther King Blvd in downtown Atlanta. There will be a protest at 8:15 am on the courthouse steps.

This afternoon we met with the lawyer and the dialysis patients.

Neil Shulman MD discusses situation with dialysis patients

Neil Shulman MD discusses situation with dialysis patients

I spoke with a woman from Nigeria named Ade Abner. She is 43 years old and has been on dialysis for 10 years. She is married to an American who was born in Georgia who is also on dialysis. She works as a registered nurse and is waiting for a green card. She is therefore not an undocumented alien.

ade_abner

Ade Abner
Some of the patients from Mexico said that some people had already gone back to Mexico. The Mexican Consulate, who Grady has been working with, told one woman that she had to leave now or she wouldn’t be able to return later. Feeling pressured to leave she went back. One woman went to Birmingham AL and is currently getting dialyzed in an ER. Others had been offered $2,000 to go back to Mexico, where they would be dialyzed for only three months.

Sep 22 2009

Senate Healthcare Bill Leads to Convulsions of Yawning

Our friend Senator Max Baucus (D-Mont.) came out with the bill that we had long been anticipating that Judas traitor and bed partner of healthcare industry “stakeholders” would come out with, namely dumping public option healthcare insurance and eliminating the chance that the government could negotiate prices of prescription medications. His plan calls for an expansion of Medicaid and financial penalties to induce individuals and their employers to sign up for healthcare insurance. This will be paid for by cutting Medicare spending to hospitals, taxing family healthcare insurance plans that cost over $21,000 a year, and getting some concessions from industry. This continues his pattern of serving up the grub for his industry partners who contributed so handsomely to his campaign. Too bad for us little guys.

Max Baucus is keeping the industry guys well fed.

Max Baucus is keeping the industry guys well fed.

This development caused the stock in insurance companies to rise and led to the comment that the insurance companies had “ducked a bullet”. I thought that was an interesting choice of, well, animals, since we had previously noticed that a congressman had observed that introducing a public health insurance option into the health insurance mix would be like having an “alligator compete with a duck.”

Karen Ignagni (AHIP). If it walks like a duck...

Karen Ignagni (AHIP). If it walks like a duck...

And Billy Tauzin of PhRMA negotiated supposedly negotiated an 80 billion “payment” from drug companies which is essentially the “doughnut hole” between when Medicare stops paying for prescription drugs and when it kicks in again for super high bills. In concession the government gives up the right to negotiate prices, so it really isn’t much of a concession to give up the doughnut hole for drugs that are way overpriced anyway.

Those healthcare industry guys must all be high fiving each other right now. Without a public option and without the government retaining the right to negotiate prices the costs of healthcare will only continue to rise and there will continue to be individuals who are not covered, perpetuating an inhumane and immoral system, that will eventually lead to an implosion of the economy.

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